Going Blind Sucks

Synopsis

A Journey Into Vision Loss

Episodes

  • Episode 25 – How You Can Help

    Episode 25 – How You Can Help

    24/08/2018 Duration: 46min

    This week we look to keep it lighter and talk about ways that non visually impaired people can make life a little easier for visually impaired people.  Pretty simple.  Almost feels weird writing that short of a description about it, but that’s what it is… So yeah, take a listen.

  • Episode 24 – Hope and Home

    Episode 24 – Hope and Home

    24/08/2018 Duration: 56min

    This week we discuss some good news we received from the eye doctor, talk about the additional stresses of buying a home when you have RP hanging over your head and struggling with enjoying now when you feel like you have to protect yourself for the future.

  • Episode 23 – Raging Because of the Dying of the Light

    Episode 23 – Raging Because of the Dying of the Light

    24/08/2018 Duration: 38min

    In this week’s episode we talk about being angry.  It is a natural part of losing anything, but society frowns upon it.   Is it really fair to expect a person to go through hard times and not be angry?

  • Episode 22 – What’s The Worst That Could Happen?

    Episode 22 – What’s The Worst That Could Happen?

    24/08/2018 Duration: 35min

    In this week’s episode we talk about how hard it can be to shake off tough vision times.  What is at the heart of being so scared and look at what is the worst that could happen?  And we look at the difference between complaining and letting others know what you are going through.

  • Episode 21 – Joy Tries RP Glasses At Night  How Validation Can Hurt Too

    Episode 21 – Joy Tries RP Glasses At Night & How Validation Can Hurt Too

    24/08/2018 Duration: 56min

    In this week’s episode Joy tries on the RP goggles again, this time at night.  We talk about how sometimes folks validating how hard it can be can make you feel worse.  We also discuss how hard it can be taking care of someone with a disability and how hard it can be to be … Continue reading Episode 21 – Joy Tries RP Glasses At Night & How Validation Can Hurt Too →

  • Episode 20 – Joy Tries RP Glasses

    Episode 20 – Joy Tries RP Glasses

    24/08/2018 Duration: 29min

    On this week’s episode Joy tries a pair of tunnel vision simulating goggles  and gets a better idea of what it’s really like to  have RP and Dustin explains why closets are for suckers. Here is the link for the glasses.

  • Episode 19 – A Glimpse In To The Future

    Episode 19 – A Glimpse In To The Future

    24/08/2018 Duration: 39min

    This week we discuss a potentially dangerous situation that Dustin got himself into and how it gave him a glimpse into what a possible future could be like.  We also discuss a sense of losing independence when traveling gets too hard and how you sometimes have to take care of yourself and maybe spend the … Continue reading Episode 19 – A Glimpse In To The Future →

  • Episode 18 – Victory in Losing?

    Episode 18 – Victory in Losing?

    24/08/2018 Duration: 41min

    In this week’s episode we talk about dealing with jokes about your vision loss.  We share a real story of the blind literally leading the blind.  We are baffled by some folks in the UK being mean to a visually impaired little girl.  Finally we talk about if sometimes it is okay to give in … Continue reading Episode 18 – Victory in Losing? →

  • Episode 17 – Everything Is Getting Super Sneaky

    Episode 17 – Everything Is Getting Super Sneaky

    24/08/2018 Duration: 32min

    In this week’s episode we discuss how sometimes things like the remote control move all on their own, or at least that’s the story I am going with.  We talk about why using the wheelchair symbol for people with disabilities can make people uncomfortable asking for help.  Finally we talk about how the volume on … Continue reading Episode 17 – Everything Is Getting Super Sneaky →

  • Episode 16 – Hitting the Next Level

    Episode 16 – Hitting the Next Level

    24/08/2018 Duration: 40min

    This week we talk about hitting the next level of vision loss and how sometimes you need to mourn even when you don’t want to.  We also talk about how to navigate talking to and dealing with all this at work.

  • Episode 15 – 3 Hours Of Strobe Lights In My Eyeballs

    Episode 15 – 3 Hours Of Strobe Lights In My Eyeballs

    24/08/2018 Duration: 37min

    Eye Doctors love to shoot strobe lights into your eyes to test for things.  At least mine do.  This week we talk about the joys of the ERG test (and there are many).  Plus we discuss the difference between going to a regular doctor and a research doctor.  There are definitely some trade-offs.

  • Episode 14 – Familiarity Is A Dirty Dirty Liar

    Episode 14 – Familiarity Is A Dirty Dirty Liar

    24/08/2018 Duration: 31min

    In this week’s episode we talk about how about you can get tricked by traveling along familiar paths.  As soon as you go to the unfamiliar you discover just how little you could actually see before.  Plus I freak out a little bit about my upcoming ERG.

  • Episode 13 – Surgery Cancelled!!! and Panic Attacks!!!

    Episode 13 – Surgery Cancelled!!! and Panic Attacks!!!

    24/08/2018 Duration: 48min

    On this week’s episode we talk about the good and bad reasons they had to push off my surgery, vision induced panic attacks, a place to speak with other visually impaired/blind people and fear of being singled out by bad guys when walking alone with a cane

  • Episode 12 – My Eyes Are Out To Get Me!

    Episode 12 – My Eyes Are Out To Get Me!

    24/08/2018 Duration: 27min

    This week we discuss why my eyes totally hate me and are making it so I need surgery in the next few weeks.  Plus, proper bed side manner (or in this case improper), why sometimes it’s better to not know the answers to your questions and maybe, just maybe, a little bit of hope.

  • Episode 11 – My Eyes Are A Medical Mystery

    Episode 11 – My Eyes Are A Medical Mystery

    24/08/2018 Duration: 27min

    So it turns out that the loss of middle vision was a bigger deal than we thought.  This week we talk about our visit to the retina specialist to discover my right eye has taken a turn for the worse, the crazy surgery I might need to have and why my doctor is crazy excited … Continue reading Episode 11 – My Eyes Are A Medical Mystery →

  • Episode 10 – Losing The Middle and Testing Limits

    Episode 10 – Losing The Middle and Testing Limits

    24/08/2018 Duration: 32min

    This week we talk about a recent problem I have been having where I will sometimes lose my middle vision and we’ll tell you all about the new improv comedy team I joined and how I am using it to test the limits of what I can and can’t do now.

  • Episode 9 – VisionWalk NYC  How Sympathy Can Sometimes Hurt

    Episode 9 – VisionWalk NYC & How Sympathy Can Sometimes Hurt

    24/08/2018 Duration: 43min

    In this week’s episode we talk about VisionWalk NYC and why sometimes when people tries to show sympathy it can actually make a person feel way worse.  That and Joy gives me a hard time about not vacuuming enough.

  • Episode 8 – Be Supportive Ya Jerks!

    Episode 8 – Be Supportive Ya Jerks!

    24/08/2018 Duration: 45min

    A surprising number of people are facing all the difficulties of going blind without the support of family and friends.  That sucks!  In this week’s episode we talk about why that might be, what they might not understand and we try to figure out if there is anything that can be done about it.

  • Episode 7 – Genetic Testing And Is It Worth It

    Episode 7 – Genetic Testing And Is It Worth It

    24/08/2018 Duration: 44min

    In this week’s episode we talk about my most recent trip to the doctor for genetic testing regarding my RP.  We look at what the experience was like, is genetic testing worth it and eventually how it affects those around you.  Let us know what you think. This one gets pretty emotional.

  • Episode 6 – What The Heck Do You See Anyway?

    Episode 6 – What The Heck Do You See Anyway?

    24/08/2018 Duration: 39min

    In this week’s episode we try to explain what a person with RP actually sees, we try to decide if I’m getting spoiled by people getting out-of-the-way in the subway and how sometimes the diagnoses can be too much to handle.

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